Patient and public involvement in health care: A systematic mapping
Short description
This project aimed to shed light on how patient and public involvement (PPI) has been conceptualized and implemented in healthcare. Through a systematic mapping of systematic reviews, the following research questions were answered:
• In which contexts is PPI conducted in healthcare?
• What are the characteristics of participants involved in PPI? (e.g. which age groups, which types of diseases)?
• Which different frameworks and models for PPI are used in healthcare?
• Which outcome measures have been reported for PPI?
• Which findings and research gaps have been identified?
The mapping review was presented at the ICIC2023 conference in Antwerp and published in the journal BMJ Open, where it became the most read article in October 2024. The project has been completed, but a new PPI hub project has been initiated in 2024, building on the lessons learned from this project.
An article has been published in BMJ Open. It contains an overview of how patients, informal carers and the general public can be involved at the organizational and governance level in healthcare. It can serve as a resource for anyone interested in enhancing patient and public involvement in healthcare, from healthcare managers to researchers to patient representatives and even policymakers. Read more about it here.
Scientific articles from the project
Study registration:
Preliminary results presented at ICIC:
Bergholtz J., Crine V., Santana M.J., Wolf A., Björkman I. Patient and public involvement (PPI) in health care: A systematic mapping review of systematic reviews. International Journal of Integrated Care. Vol 23, S1. International Conference on Integrated Care (ICIC), Antwerp, 2023, Conference abstract.
Video of the presentation at ICIC2023, Antwerp:
Published article and related news items:
Bergholtz J., Wolf A., Crine V., Cleeve H., Santana M.J., and Björkman I. Patient and public involvement in healthcare: a systematic mapping review of systematic reviews – identification of current research and possible directions for future research BMJ Open 2024;14:e083215. doi: 10.1136/bmjopen-2023-083215.
GPCC news article:
New publication can be a resource on how to enhance patient and public involvement in healthcare governance
Top ten most read in October, Blog BMJ Open:
GCPCC conference abstract (oral presentation)
Bergholtz J., Carlström E., Björkman I., Wolf A. (2024) A bold proposal to reduce tokenistic practices in patient and public involvement (PPI) initiatives on meso- and macro-level: Striving for “person-centred PPI” Conference Abstract, Global Conference on Person-Centred Care, Gothenburg, ID 337.
Researchers
Jana Bergholtz
Axel Wolf
Vanessa Crine
Helena Cleeve
Maria-Jose Santana, professor, Cumming School of Medicine, University of Calgary, Alberta, Canada
Ida Björkman
Research Partner:
Eskil Degsell